A one-year-old Birmingham programme empowering diverse
communities to understand cancer is set to help smash more health
taboos after reaching thousands of people.
Work by Ambrose Koryang and a team of staff at Birmingham-based
Health Exchange, has given traditionally 'hard to reach'
communities more peace of mind about potentially devastating
illness.
Ambrose, Health Exchange's support coordinator for Macmillan
Cancer, which funds his post, has regularly broadcast on
cancer-related topics through local Birmingham community radio and
led weekly workshops for community organisations.
He is now planning to also reduce stigma attached to mental and
sexual health as well as some less high-profile cancers as part of
a countrywide scheme with the UK volunteering charity CSV.
Ambrose, who is currently totting up the exact number of people
helped so far, says it runs into thousands thanks to 'countless'
messages he has broadcast through New Style Radio and at the
regular workshops.
He has also directly helped around 20 individuals undergoing
medical treatment or who've been concerned about their specific
symptoms as well as answering financial and welfare worries,
advising on how benefits may be affected.
In one case, Ambrose became an advocate for an elderly
Birmingham woman who felt her views weren't being wholly listened
to by her medical team, ultimately enabling her to spend her final
days at home rather than in hospital.
He says: "In some communities there isn't even a word for
cancer, or people may feel ashamed to discuss it - in some cultures
having cancer can mean the patient feels a stigma, or wants to
pretend it's not happening.
"As you can imagine if you have grown up thinking there is no
such thing as cancer or that there is a shame attached to this
potentially terminal illness, you will be terrified. On top of that
barriers coming from language and culture may mean information
isn't accessible.
"In African-Caribbean, or other black and minority ethnic
communities, which can be very close knit, people can tend to shy
away from finding out about cancer, they are so scared and
embarrassed.
"Of course there is no need, with one in three people affected
by cancer and more than two million people in the UK living with
the disease and managing their symptoms, or successfully undergoing
treatment, cancer doesn't have to be as devastating as people
fear."
"My work with Health Exchange and Macmillan aims to end that
sense of shame and fear. There has traditionally been a huge gap in
information aimed at BME communities.
A simple but very effective achievement for Ambrose has been to
persuade Macmillan to incorporate information in a 'Questions about
cancer' leaflet in various languages, including Chinese, Bengali,
Urdu and Polish.
In the year he has been in post, some 1,000 such leaflets have
been distributed, advising people where to turn for help.
At Health Exchange, a team of more than 20 health supporter
staff also underpin Ambrose's work, alongside that of other Health
Exchange services, staff and coordinators.
Now Ambrose, 32, of Winson Green, is also set to expand his work
with Health Exchange by taking part in a nationwide initiative by
CSV called Stripping it Bare - where 'health champions' will tackle
embarrassing illnesses with Government funding.
This will also target groups who have traditionally been thought
of as hard to reach. Alongside bowel and prostate cancer, it will
also focus on other potentially taboo conditions including mental
and sexual health.
Ambrose says: "The work we have done in providing cancer support
and information at Health Exchange will play a vital role in
informing the CSV Stripping it Bare programme.
"We are currently developing the programme for Birmingham which
will target older people and I am drawing on my experience from the
last 12 months to help take the programme forward."
Health Exchange is a social enterprise dedicated to the
promotion of health and wellbeing for everyone and reducing health
inequalities. It works on behalf of primary care trusts, GP's,
local authorities and other bodies who have an interest in
promoting public health and wellbeing. Its staff and volunteers do
this by providing a range of easily accessible locally based
services, delivered in a way that makes health and wellbeing
available to everyone.
Partner relations manager Patrick McCormick says: "In just 12
months, Ambrose has made a significant difference to the lives of
marginalised people who previously found important information
about their condition hard to access. We are very proud of what he
has been able to achieve as well as all the wonderful efforts of
our volunteers and we look forward to reaching out further through
the Stripping it Bare campaign."
For more information, Patrick McCormick can be contacted on 0121
663 0007 or his mobile number is 07788 656 883.